With multiple clinical trials now open for enrolment for people in Australia and New Zealand, it is an exciting time for the FOP community. This is exciting progress in just a small number of years since the first ever FOP clincial trial! It represents the generosity and commitment of the FOP community, and amazing work by researchers around the world – thank you to everyone who has helped make this possible.
To help keep track of developments, the International FOP Association have developed a global map of trial sites so that people with FOP and their health care teams can know what options are available to them. This includes sites in Australia and New Zealand. Please contact the trial sites directly with any questions about the trials. Even if you think you may not be eligible/able to enrol, if you are interested in enrolling we encourage people with FOP to discuss your individual circumstances with the trial sites, and your treating health care teams.
If you are having trouble finding site contact details, let us know via info@fopaustralia.org and we will do our best to assist.
See also: Clinical Trials page for more links.